Dear Friends and Colleagues:
Last month, the U.S. Centers for Disease Control and Prevention (CDC) released new findings that estimate 1 in 68 children in multiple communities in the United States has been identified with autism spectrum disorder (ASD). This new estimate is roughly 30 percent higher than previously reported in 2012.
Autism is a complex developmental disability that typically appears during the first three years of life and affects a person’s ability to communicate and interact with others. It is defined by a certain set of behaviors and is a “spectrum disorder” that affects individuals differently and to varying degrees. There is no known single cause of autism, but there is growing agreement that there is a genetic component.
The CDC said it’s unclear what exactly is causing the increase, stating it could be improved methods for diagnosing autism or an actual spike in the number of children with autism, or a combination of both factors. Whatever the reason, the numbers are staggering, overshadowed only by the challenges faced by people with autism spectrum disorder who often need significant supports and understanding to enjoy a meaningful and successful life. The challenges of raising a child with an ASD can place enormous stress on the entire family who must rely on a network of supports and services to help their relative succeed.
What we do know is that individuals who are on the autism spectrum can and do succeed. OPWDD’s Autism Platform section on our website lists many successes: Adrian, an accomplished filmmaker; Frank who overcame fears and an eating disorder to enjoy a more healthy and active life; Michael, whose love for art and stained glass has turned into a career; and countless of others we may know personally.
OPWDD’s Institute for Basic Research in Developmental Disabilities is world renown for its integrated approach to diagnosing, preventing, and treating developmental disabilities. Our research arm is currently involved in a number of studies in the field of autism focusing on early diagnosis, genetics and autism, brain analysis, applied behavioral analysis, fragile x testing, and more.
Despite this important and groundbreaking work, autism remains a puzzle, as the Autism Society’s symbol so aptly portrays. According to the Autism Society, the Autism Awareness Ribbon puzzle pattern reflects the mystery and complexity of the autism spectrum. The different colors and shapes represent the diversity of the people and families living with the condition. The brightness of the ribbon signals hope—hope that through increased awareness of autism, and through early intervention and appropriate treatments, people with autism will lead fuller, more complete lives.
OPWDD provides supports and services to people with developmental disabilities, including people diagnosed as being on the autism spectrum. Please join me in recognizing Autism Awareness Month to help raise awareness of this disability which continues to grow at alarming rates.
Sincerely,
Laurie A. Kelley,
Acting Commissioner